My Act of Combating Neurobigotry

Friday, July 21, 2006

Savage Hypocrisy

Original Post: July 16, 2006

I read up on the Cure Autism Now site that they finally decided to address the issue of neurodiversity. In the FAQ section, there is a question that states:

Q: Why do you talk about "curing" people with autism? Shouldn't we be working on acceptance and support, instead of a cure?

A: All people with autism deserve the acceptance and support of their communities, and an understanding of the challenges they and their loved ones face. When we talk about a cure for autism, it is not meant to belittle people with autism, any more than those seeking a cure for spina bifada or other disabilities are devaluing the lives of people with those particular handicaps. But, for many people with autism and related disorders, life is a constant struggle to understand and be understood. With the advancement of science through our many research projects, we hope to improve the quality of life for all those with autism.

I shake my head and don’t know whether to laugh or cry. You want us to believe you and the rest of the autism establishment care about the dignity of autistic citizens despite years of disparagement because YOU say so in a single paragraph? You expect us to buy that line? Sure autistic people may not be good at social interactions or immediately “getting” underlying messages, but we’re by no means stupid. Let us breaks down this piece of hypocrisy one phrase at a time.

All people with autism deserve the acceptance and support of their communities, and an understanding of the challenges they and their loved ones face.

Sure, if that were the case with you people, why isn’t the job of the CAN organization to dispel stigmatizing views of autism? How is it respectful that autistics are called tragic and the condition is described as “worse than cancer”? Why does CAN not stand for "Celebrate Autism Now"? How is it respectful to call autism a “plague”? Let me remind whoever from CAN is reading this that one of their leaders stated:

“Autism is like this… it’s like somebody sneaks into your house in the middle of the night and takes your precious baby’s mind and personality and leaves their bewildered body behind. If one in every 250 children in America were actually being kidnapped, we would have a national emergency. And we do; it’s called autism.”

Clearly, the kidnapped motif is quite common in the marketing of autism to the public. While your at it, why doesn’t the person who made the above statement join a milk manufacturer and print autistic children on the side of milk cartons. That way parents AND young children can see the missing VICTIMS while eating their Rice Krispy’s every morning with the Autism Speaks awareness information on it.

When we talk about a cure for autism, it is not meant to belittle people with autism, any more than those seeking a cure for spina bifada or other disabilities are devaluing the lives of people with those particular handicaps.

Well, if you really did mean that, watch your language. Sending messages to people that it is wrong to even engage in harmless stims and that it is bad to pursue unusual interests during treatment sessions implies that society finds whom these people are undesirable and defective. Lack of accommodations in making social interactions exacerbates this problem. This is suppose to NOT belittle autistics… HOW?

As for needing greater awareness for autism, I already said that it is necessary. More funding is necessary for a greater understanding of autism. I agree to the point with the current establishment that autism is SEVERELY under-funded as a medical issue, being more common than most childhood medical conditions. We SHOULD be realistic about the challenges those on the autistic spectrum face. However, we should not use such dehumanizing language to describe autism as a condition. The realities of children who can barely speak or care for themselves are just as real as those of J-Mac and other famous autistics who are verbal and can live independently. However, any autistic who brings up any positive awareness for autism instantly has his/her sanity called into question. People demand proof of diagnosis, and make vicious personal attacks. It is this hypocrisy that exemplifies the very things the autism establishment criticizes in autistics.

Disclaimer: The following is a satire.

Let us suppose for instance that the autism is RIGHT about the stereotypes of autistic adults. Autistic self-advocates are what they would call “not really autistic enough”, “misanthropes”, “Borderline Personality Disorder”, “pharma-shills”, and even sociopaths. Oh, and let us throw some blood libel into the mix. Autistic adults are advocating for the COMPLETE neglect of autistic children for only one reason. You see, autistic adults are like vampires. They start out as little children who are robbed of their souls little bit by little bit by autism as they grow up. By the time they grow up, their souls are completely gone. But all of them gain incredible savant powers that they use to do evil, although mostly idiotic, things. The only way to keep this power is the consistent consumption of autistic children’s blood; it is little wonder why they run on a routine too. That’s why autistic adults keep children autistic so that they the children are about 10 years old and plump enough they gas the children, stuff them in the back of vans, take them to the underground lairs, cut their throats, and boil their blood. The only way to prevent such vampirism is to prevent autistic children from becoming autistic adults. Thus, a cure or pre-natal test to destroy all of autism is imperative.

End of Satire

Whoa. Beat THAT John Best Jr.! If I literally meant what I wrote above, I’d give you a good run for your money on the defamation you can create. In all seriousness, even if the above were true about autistic self-advocates, the establishment is sure doing a good job setting a moral example and encouraging others to do the same (not!). You can’t prove your moral superiority even in the circumstances above.

First, if autistic adults were truly rude and misanthropic (which they are not in real life), the “qualified” people who are claiming to speak for autistics won’t be too different either. The message is, “Agree with me or I’ll slander/libel you into oblivion." Yet how come they are morally on top? No one has to question their credentials, yet it is perfectly natural to request private medical information from autistics. Imagine how the parents of the autistic children I work with at the Kennedy Krieger Institute would feel if I made accusations about them as not being the children’s parents and actually being “imposters” or “child kidnappers”. It would not be very fun for me. Yet it would be common protocol if I were to make statements contrary to popular opinions of autism.

Secondly, there is a double standard. If the satire above is true and some autistics are caught for drinking blood from murdered children (that they murdered), they would instantly be condemned. Heck, even I would probably condemn them without being inherently prejudiced against autistic. When William Freund killed those two people, people may become paranoid about Aspies and profiling may become acceptable. I understand now that Freund was misguided in his actions and very wrong indeed, but nothing justifies potential phobia against autistics in general. At the same time for most neurotypicals, it would be seen as “understandable” for a neurotypical mother to smother her autistic daughter to death with a plastic bag. It would be “understandable” for the TWO neurotypical parents of a 19-year-old autistic male to lock him in a burning apartment. All this because of the stress of autism? Isn’t all of murder wrong? This double standard may be no different than the Jim Crow laws from the olden days.

Lastly, the epidemiological statistics on autism are misused. The current establishment’s use of them numbers is as shady as them lawyers the vaccine plaintiffs are hiring. For the establishment knows that any consistency will result in a lose-lose situation. The current 1 out of 166 people being affected by autism in America is used so often I’m surprised it is not a meme like “Peanut Butter Jelly Time”. This statistic includes children and adults, on all levels of functionality. Now here is the tricky part. If the establishment seeks to exclude autistics who can communicate from discourse about autism policy, the epidemiological numbers do not seem so bad. If autism is marketed as a pandemic to the American people, that means the establishment has acknowledged many communicative autistic adults as such and thus allow them to make their own statements in the arena about autism. How the establishment keeps sticking to the “autism epidemic” line while excluding so many autistics from discussion of their own condition is beyond me.

The next time you read any more mainstream autism literature, please challenge any extreme assumption or other ones you have a hunch are wrong. The hypocrisy I would think makes the establishment’s thinking system very suspect at best.

88 Comments:

  • Hi MeridiusMD899. Thanks for letting me know about your website! The more of us who blog about the curebies' hypocrisy, the better, and you're doing a very good job of deconstructing their propaganda.

    You've pointed out something very interesting here, that CAN is comparing autism to spina bifida, for which a prenatal test has been available for many years. Most babies with spina bifida are aborted. Was it just coincidence that they picked spina bifida, rather than one of the thousands of other medical conditions they could have chosen? I don't think so.

    You should join the bloggers on Autism Hub. I don't know whether Kevin Leitch has finished his software updates and started accepting new members again, but when he does, you'd fit right in with that group.

    By Blogger abfh, at 4:46 PM  

  • Thanks abfh. I'm glad you're enjoying the site. I read a lot of your opinions on the connections between the autism establishment and eugenics. I will probably post another entry about my opinions that will challenge curebies into thinking about what they are doing (it's got something to do with a license, but I'm not spoiling it). In the meanwhile, look out for my next entry about what I think constitutes an "Autism Anthem".

    By Blogger MeridiusMD899, at 5:49 PM  

  • Hi Meridius;
    Nice to meet you. Has it crossed your mind that if autistics were all cured there would be no need for any social programs to help them? If you and others need some sort of assistance but turn down a cure, then you should fund your own social programs instead of sticking the taxpayers with it. Your attitude is no different that drunks in the gutter who want free booze but don't want to bacome useful citizens. You also have a hell of a nerve associating yourself with children who can't talk or do anything for themselves. You might not need a cure but they do. When you tell us not to cure these kids, you are telling the world you are insane and need lots of help. So, why don't you and the rest of the nitwits worry about yourselves and stop trying to tell us how to help our kids. There is no neurobigotry! There are just arrogant idiots who advocate letting kids suffer which turns the whole sane world against everything else you stand for.

    By Blogger Fore Sam, at 4:44 PM  

  • Meridius;
    Since you have nothing in reply, you must have wised up and seen the errors in your thinking. I'm glad I helped you see common sense.

    By Blogger Fore Sam, at 5:51 AM  

  • Mr. Best,

    It looks like we had a little theory-of-mind problem on your side as well. The only reason I haven't updated my blog recently is because it is crunch time for an exam I am preparing for: the MCAT. Unlike some people who obsessively stalk others to spout their own nonsense, I have a life. I will be updating my entries as soon as the test is over. Once again, its all about how you are right and everyone who disagrees is wrong. Just because you pontificate yourself repeatedly doesn't mean you automatically win a debate.

    By Blogger MeridiusMD899, at 1:46 PM  

  • Meridius;
    I finished school a long time ago so I have free time to do whatever I want. What you call stalking is actually a man who's educated on the facts about thimerosal correcting bad information that harms children.
    Babies have been poisoned, kid. Pay attention and learn the facts they will hide from you in med school.

    By Blogger Fore Sam, at 5:36 PM  

  • http://autismdiva.blogspot.com/2006/08/5-weird-things.html

    Hi Meridius MD899,

    if you have time, you've been tagged to do the "list 5 weird things about yourself" blog thing... don't worry if you are too busy.

    By Anonymous Camille, at 12:54 AM  

  • Hello,

    I am a female with AS. I find it difficult to communicate with other people. But I never understood why. I picked up at a very young age that certain 'personality traits' I had were considered to be unusual, perhaps a little bizarre so I've been spending my entire life trying to fit in to be socially acceptable.

    I sensed that people did not have the time or inclination to listen to things I had to say becaus I struggle to find the right words. So I withdrew into myself to avoid being laughed at or thought a fool, which probably accounts for my love of writing. Anyway, I became a very quiet individual because I thought people didn't want to listen to me. Then people became very suspicious of my silence and did not trust me. I could talk to people only on a one to one basis which seemed to exacerbate the mis-trust and I was alienated. Naturally, as you might expect from someone who tries very hard to suppress their true self I would have outbursts which I suppose comes down to frustration. As a result my family grew intolerant of me and have nothing to do with me any more. I see my mom sometimes but not a lot.

    I've been observing NT's all my life and to tell the truth I don't like a lot of what they do. No one is perfect. No one has the monopoly on life and how to live it. I DONT WANT TO BE LIKE THE NT's because most of them just copy each other and very rarely have an original thought in their lives because someone else did all the thinking for them.

    I like having a mind of my own. A 'cure' is NOT the answer to Autism/AS. Rather tolerance and accepting that we can all learn from each other to progress socially and intellectually. Far too much importance is placed on nonsense in society. How is that healthy for any of us, both as a society and as individuals? NT's currently rule but they seem to have their own fixations on no end of irrelevent agendas which are spreading into all aspects of all our lives e.g. appearance and image rather than content.

    No I don't want to be NT. I tried it and it didn't work. We ALL (NT's and AS) have undesirable behaviours. And we can ALL benefit from being more understanding and tolerant.

    I received my diagnosis rather late in life at the age of 41. When I received it I thnked my psychologist - Digby Tantum because I said "Now I know I'm not a bad person. It's like having a license to to me"..... At last....No way do I need a cure. It's society that needs a cure!

    By the way i took your advise MeridiusMD899 and confronted Simon Baron Cohen who says that Autism is just "a extreme form of maleness" I suggested to him that he is affected by Pop culture. It's not helpful to think of men and women as 2 different entities but rather as human beings. And these notions of "Men are from Mars and women are from Venus" only succeed in holding the human race back intellectually rather than progressing.

    Thanks for your interesting blog. It's very stimulating.

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  • By Anonymous Anonymous, at 6:15 PM  

  • well since I never saw that your not updating xanga, i'll copy and paste my comment here.
    ==
    Can, last time I looked was set up by parents, who have a kid with autism. Now i'm not sure on what end of the spectrum. Please do not belittle them, for actually caring. When and or if, you ever become a parent and you see your child, and then see the child you have change, and maybe change to a disorder or whatever the hell it is, you grieve. You grieve for what cannot be.

    Bluntly.

    These people are doing what the heck they can. Is it nature, is it mercury, no one knows. Is it a gift, a curse, a mixture of both, I dont' know. All I know is that I struggle every day trying to get my kid to somehow see the world. I fear the best he'll have is a halfway house. I fear letting him down. I also know I'm damn lucky. I hope I can encourage his gifts and find a way to balance out his weaknesses. I hope he'll be a functioning adult. By functioning, I mean one that can live on his own, think for himself, hold down a career he is happy with.

    You can do more, trying to help these parents into your mind, by telling them what worked for you, then by critisizing a orginization that gives money to hopefully find out just what the heck is going on.

    Yeah, kidnapped btw. When you see the baby you had given birth too, one that talked, and looked at you, dissapear and the light fade from their eyes, yeah you do feel it's akin to kidnapping. Even if they can see complex geometric patterns, and or do complex math in their heads.

    I understand your concern, but you have to take a step back from your agenda and try to understand theirs. Read without judgement some of these parents accounts. Maybe then you can see the love, frustration and in some the bittersweet victories of commonplace occurances.

    We can worry about the labels, and all the other pretty packaging, once we know what the heck happened. WE can worry about the labels once we as parents know how to reliably get through to our kids.
    Posted 1/9/2007 4:11 PM by moonwolf23

    By Anonymous Anonymous, at 1:18 PM  

  • Btw, those curebies, you so negligently dismiss, are frightened, frustrated, concerned people. They are trying their damndest to do the best they can.

    Respect is a two way street. Making the world accept you, doesn't mean forcing the pcitis police down others throats. It only creates resentment. And while you may be able to talk and communicate, their is a goodly number that can't.

    Try reading let me hear your voice, and see if you dont' cry through that book.
    moonwolf23

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